Let me give you some back story. When Riley was 6mths old we went to our normal 6month check up, at this visit the doctor pointed out that Riley might have a bit of a lazy eye and that we should have it looked at, so she set up an appointment for our little man.
We pull up at the pediatric eye doctor's office without a care in to world, my little sister has a lazy eye and with a little eye training it is completely unnoticeable. I sit in the big black chair holding Riley while they put eye drops in his eyes, we wait.....and wait ....and wait....they come back and look in his eyes. I hear the doctor say "hmmm, lets try different drops" so again we wait....and wait...and wait....she comes back in, looks in his eyes staying mostly on the left side( the "lazy" eye)....then just like if she were saying "Hi" she looks at me and utters the horrifying words that still to this day breaks my heart "He is blind in his left eye, there is nothing we can do, the optic nerve didn't form"...I felt the room spin as tears flood my eyes, we are told the appointment is over and that once he is walking to get glasses so that his right ("good") eye is protected or else he could become completely bind. The whole car ride home Brett and I hold our left eye shut to get a grip on what Riley would be dealing with.
It turns out that he should be able to do anything a "normal" person could do except that he will have problems with depth perception , and could never fly a plane. We get his glasses at a year old and try to get him to wear them with no luck...
We changed doctors and were asked to get a second opinion about his eye....same results and no answered questions...
Riley is 2 years and 5 months old we were trying to get him to wear the glasses and he broke them. So like a good mom I set up another appointment with a new doctor, which is the same doctor mommy and daddy has. This appointment was set up for today. I had my mom take us since Brett had to work. We walk in I fill out all the papers, we wait to see the doctor, we get called back...Just like last time I sit in the big black chair and hold him while they put in the eye drops(not as easy as last time)...we wait....play Barney on the cell phone to keep him calm...and wait....The doctor comes in, I tell him all that i know...optic nerve isn't there and he is blind. He looks at Riley's eyes as I try my best to hold him still (not easy) then he imforms us that yes he is blind and there isn't anything we can do. Then Finally I get my questions answered......"What is it called?" --"Optic Nerve Coloboma but he also has Clouding of the lens (cataract)" Will his eye change colors"----"no but in the sun, light or in pictures it will be cloudy" then the dreaded question " Will his eye grow" -----"No, it will not grow there for it will be come more cosmetically noticeable the older he gets"......my heart sinks.... but wait that's not all something new that we had no clue about "Riley also has astigmatism in his right ("good") eye and is far sighted" ....here we were thinking at since his left eye is lacking his right eye will be super strong .....NOPE. We then finish the appointment by picking out Riley's new glasses. We leave....I act like nothing happened...get home mom leaves, call Brett and tell him to come home as soon as he can....my heart is once again broken....I can't help but to worry about his future, how will school go for him, will kids be mean, call him names, will he want to be a pilot or a surgeon and not be aloud....will his depth perception be off so much that he cant play sports (I have always wanted to be a football mom)...........
only time can tell.
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